I thought I would do a blog to help vent my frustrations, log my days and funny quotes from customers from on the day... I hope it will entertain some people and also keep my sanity while battling for my independence...
First blog ever...
lets finish with end of 2011.....
So the end of last year was pretty awful... My DLA has been withdrawn leaving me with no car as for 6 Jan, I know it may not be a big deal to most people, but I suffer with Chronic Tendinopathy which is a clinical syndrome characterized by chronic pain and tendon thickening in my right lower leg, It is a degenerative condition not an inflammatory condition. The tissue uniformity becomes disrupted and unorganized, causing tissue restriction and a severe loss of function. This in turn, causes a loss of flexibility, increased rigidity, and stiffness in the tissue. This leads to a loss of strength and function, which ultimately means that I end up with pain and dysfunction of the affected area. Chronic Tendinosis is debilitating.
Along with Chronic Tendinopathy I have Accessory Navicular, this is an extra bone located on the inner side of the foot just above the arch which has develop a painful condition known as accessory navicular syndrome when the bone and/or posterior tibial tendon are aggravated. Walking is extremely painful as this area gets aggravated.
Also the musculotendinous junction has soft tissue oedema posteriorly to the tendon and soft oedema around both malleoli lie extending from just above the the musculotendinous junction down to just below the mid part of the tendon. Excess fluid in the tendon sheaths of my tibials posterior and flexor hallucis longus.
My disability with my right leg has been ongoing since August 2007 when I woke up with a tight swollen painful right leg and attended A&E as I was concerned about deep vein thrombosis, a blood test showed normal and I returned home. Since then I have sort medical advice and treatments for the past 4 years via , various doctors, hospitals, various scans, vascular checks, MRI etc and sports therapist which have not resolved my problem, it has in turn given me the tools to continue to lead my life the best I can as my condition will not get better is will get worse and is now starting to affect hips and other parts of my body.
November 2009 I was awarded high rate DLA as I am unable to walk distances i.e do simple things like weekly shopping, walk to the bus stop, having the car has really made a huge improvement to my life, I have been able to do things get out and about as long as I could park close to a restaurant or friends home. I have to say I am not looking forward to my little car going back on friday.... I hope the DWP write to say they have reviewed my case and I can keep my car.. but its very unlikely. I will be depending on other people helping me get to work, I will have to rely on my partner to do more for me, more than she does now... I feel in independence slipping away... I must stay positive I keep telling myself.
My GP has been great and will be sending a letter when it comes to doing the appeal.. and has changed my pain medication so I now have a little plaster which releases pain medication every hour, which I have to sign for at the chemist as its a controlled drug.. it helps but does not take the pain away when I use my leg.. Such as today...
So its back to crutches and I hope my wrists hold out, as I have had incredible pain from them when I use my crutches and they dislocate... but at least today its just the pain I have to deal with, pain in my ankle, lower leg and wrists.. just because I wanted to go out to lunch at the Trafford Centre (TC), and to the home centre - thats the other little building away from the TC - nope we did not walk over the bridge, we went to potters had lunch and back to car to drive over to the home centre to window shop and sit and watch people pass by.. before long I was in incredible pain and we headed back to the car and called it a day... now after a few hours of rest and elevation along with my partner running around getting drinks etc, the pain is slowly subsiding but still not enough to get some sleep (ops its now 3 January!).
I know I could buy myself a car, (which I expect I will end up doing) but being on mobility for 2 years and now losing it before the 3 years, means I lose the £250 money back as the car is like brand new, I also lose my deposit £500, and I have now lost my 9 years no claims discount, so I have to start again and living in Manchester insurance is not cheap! and being on a basic salary of £12,500 running a family home does not leave a lot left if any to buy a reasonable car.... but I know realistically I need one to keep mobile...
I will keep this blog updated as things progress.. or digress...
Ok I am signing off and heading up to bed... I recorded Treasure Island on my TiVo box... thats will keep me entertained until I drop off to sleep...
Nite all - Keep Safe!
Tam
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